BPES Foundation
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Welcome to the
​bpes Foundation

BPES is a rare genetic syndrome.  Our goal is to provide organized information, resources, and stories to provide support and awareness to people affected by BPES and medical professionals.  ​

Find out more

Welcome!  BPESfoundation.org was recently published by five people who have BPES or have children with BPES.  This is currently a work in progress and we welcome your feedback, questions, and ideas.  If you would like to share a photo, review your doctor(s), contribute to the blog, share advice, etc., please contact us. 
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